Another year, nothing changes!
This picture really resonates with me. I hate that I have not been able to work for 20 years. I really want to work and have a purpose and an …
Time and Tide Waits for No Man or Woman!
All through life we are expected to make progress, meet milestones and improve ourselves. So what do you do when you have an illness that halts progress and self development? …
What Can I Do?
What can you do was a question asked on a facebook page the other day. I answered ” I am limited due to health problems and get so hung up on …
20 years and counting!
What have you been doing for the last 20 years? Me I have been busy living with ME. Here is my latest rhyme. 20 years with M.E, 20 years since …
Ode to my Bed
I feel like I spend, half my life in bed. We’re together so much, we really should be wed It’s not much fun, with a bed for a friend. Lying …
Winner Takes It All
Having watched Mamma Mia countless times with my daughter and being lucky enough to go to the show for my birthday, the song Winner Takes It All blows me away every time …
Millions Missing
Today marks #ME Action’s, Millions Missing Campaign. This is a worldwide day of protest for those with ME/CFS. “On May 25th, 2016 #MEAction is global day of action for equality for …
Little Miss Brainfog
Little Miss Brainfog lived in a normal house in a normal street, surrounded by normal people. Little Miss Brainfog also looked normal, but had an illness with and extraordinarily long …
Painful music
Have you ever notice that songs are usually about some powerful emotion, usually love or loss.Last weekend when it was cold and we kept saying oh the wind is so …
What is the point?
I wrote this nearly a week ago, but feel so ashamed it has taken until now to pluck up the courage to share it and I still don’t know if …