Princess update
The photos went well if somewhat exhausting, really feeling it now, will post main photos on Tuesday, but here is one to keep you going. It’s Emily by the way …
I am well aware!
What a day yesterday, I was feeling so ill and down and convinced myself I was so pathetic, I was so stressed frustrated and feeling useless I needed to rest but …
Wear it for ME
Browsing on Cafepress I found some great clothing for ME awareness. I think they are great, but having spent quite a bit on stuff for the fundraising can’t really justify buying …
Distinct Changes found in ME. Does it actually mean anything?
Today’s news in the ME world is Distinct Changes found in ME. Just another story in the long debate of is it Physical or is it all in the mind. …
What is in a Name?
Well the latest in the ME/CFS world is what to call it again? But how important is a name? My name is Jane, does that tell you what I am …
Physio Pain Diary 12/12 to 18/12 Update 18/12
One of the reasons I started my blog was to keep track of symptoms and treatments, but have not done this so far. My Physio always asks me how I …
Lost
I feel like I got totally lost with everything this week. Emily was off sick on Monday so I didn’t get to 5 ways. It was quite nice to have …
Feeling guilty and pathetic
How do you cope when you hear about other people being ill with serious illness? Does it make you feel guilty? And like you are making a fuss over nothing? …
Frustrations
Its been a very frustrating day today. As usual I was up early, its nice to get a bit of peace and quiet before anyone else gets up, but I …
Struggling and calender pin up!
The days and weeks seem to be getting more difficult and my energy is quickly depleted, but then when I realise how much we are doing its hardly surprising. As …